Positive about Down syndrome

Positive about Down syndrome provides information and support to new and expectant parents of a little one with Down syndrome.

We have amazing online support for our families, we know how important it is for them to have access to accurate contemporary information and so provide our book #NobodyToldMe the truth about Down syndrome to families and literature to maternity units.

We have recently introduced online early development groups for our preschoolers, baby Makaton signing courses for new parents and Makaton training for members’ nurseries/childminders.

We believe every parent should receive the best possible care and support.

We believe the arrival of every baby with Down syndrome should be celebrated.

We believe every child with Down syndrome should be given every opportunity to flourish and thrive.

Whether you’re considering screening, have received a high chance or confirmed result that your baby has Down syndrome, we are here to share with you our experiences.
We felt a lot of the same feelings you may be experiencing – many of us were sad, worried and not sure of the future; others felt utterly devastated, were convinced that our lives would never be the same and wondered whether we could continue with the pregnancy; some took it in their stride, although they were perhaps a little apprehensive.

Now that we have experienced the reality of Down syndrome, we know that we needn’t have worried or been sad, upset or devastated. Yes, our lives have been different, but for the better.

If you are in the UK, please join our closed group Great Expectations, exclusively for expectant women. We are here to try to answer your questions, address your worries and concerns, never to judge, but to offer you the opportunity to see the reality of living with Down syndrome.

We have midwives, neonatal and paediatric nurses who can answer general queries, as well as a wonderful group of mums with a diverse range of experiences around discovering and reacting to the news baby has Down syndrome.

Who we are


A mum is on a mission… …to change perceptions and attitudes about Down syndrome. In 2004, Nicola Enoch gave birth to Tom and was initially devastated to discover he has […]

Provides a pack to a new or expectant parent including #NobodyToldMe and a congratulations card!

Provides a pack to raise awareness about Down syndrome and promote inclusion in a nursery.

Provides counselling to a new or expectant parent.

Pays for a new parent to access a 6 weeks Makaton baby signing course.

Provides resources and training to a maternity unit for a year.