Whether you’re considering screening, have received a high chance or confirmed result that your baby has Down syndrome, we are here to share with you our experiences.
We felt a lot of the same feelings you may be experiencing – many of us were sad, worried and not sure of the future; others felt utterly devastated, were convinced that our lives would never be the same and wondered whether we could continue with the pregnancy; some took it in their stride, although they were perhaps a little apprehensive.
Now that we have experienced the reality of Down syndrome, we know that we needn’t have worried or been sad, upset or devastated. Yes, our lives have been different, but for the better.
If you are in the UK, please join our closed group Great Expectations, exclusively for expectant women. We are here to try to answer your questions, address your worries and concerns, never to judge, but to offer you the opportunity to see the reality of living with Down syndrome.
We have midwives, neonatal and paediatric nurses who can answer general queries, as well as a wonderful group of mums with a diverse range of experiences around discovering and reacting to the news baby has Down syndrome.