If you are looking for information about Down syndrome as part of family life, you have come to the right place. Here parents give their honest and open response to finding out their baby has Down syndrome.
Some new and expectant parents struggle with discovering baby has Down syndrome, so if you are feeling like this, please know that you are not alone, we are here for you. We hope you and your extended family and friends will find this website inspirational and interesting and that you will get an inkling of how much fun life will be.
If you would like to know about any element of our lives please just ask – whether you’ve been told baby may require heart surgery, are concerned about the impact of having a little one with Down syndrome will have on the rest of your family, what financial benefits you may be entitled to or what adulthood may look like, we can answer your questions, signpost you to information or local support, share our own experiences and hopefully enlighten and reassure you.

We can put you in touch with local support groups and online we have closed Facebook pages exclusively for expectant parents, new parents and also one for Grandparents. You do not have to do this alone!
Ishaan <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


Reshma Stanislaus tells us about her pregnancy with son Ishaan. She describes him as the glue of ...

Matilda <img src="https://positiveaboutdownsyndrome.co.uk/antenatal.png?189db0&189db0">


Getting pregnant has been tricky for us, but we knew we had to try for a sibling for our first ...

Sophie <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


After a textbook pregnancy, and a labour which followed my birth plan pretty perfectly, Sophie ...

Devon <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


On 4th May 2011, my second granddaughter was born, They named her Devon. We didn’t know before ...

Jack <img src="https://positiveaboutdownsyndrome.co.uk/antenatal.png?189db0&189db0">


The day after the 14 week scan, which fell on a Thursday, we received a phone call from the ...

Jack <img src="https://positiveaboutdownsyndrome.co.uk/antenatal.png?189db0&189db0">


For 6 years Richard and I had been trying for a baby. Our first IVF attempt was a success but we ...

Ella  <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


When Ella was born, we were told soon after her birth that she has Down’s Syndrome. Our ...

Lily  <img src="https://positiveaboutdownsyndrome.co.uk/antenatal.png?189db0&189db0">


In May 2015 my husband James, who was 32 and I who was 28, were absolutely over joyed to discover ...

Lois  <img src="https://positiveaboutdownsyndrome.co.uk/antenatal.png?189db0&189db0">


At the time I discovered my pregnancy, I had just turned 42 although I felt I was 25 still, I had ...

Amelia  <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


The day our beautiful daughter Amelia was born, our lives changed forever. We had tried to ...

Chiara  <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


It took us almost one week to name our second daughter.  We wanted to show the world that she is ...

Evie  <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


My husband Chris and I had been married for a couple of years and felt we were ready to start a ...

Sophie  <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


We declined the screening for Down syndrome when I was pregnant with our first child Maisie, ...

River  <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


My story is very unique, in the sense that River wasn’t diagnosed with Down syndrome until he was ...

Lennon  <img src="https://positiveaboutdownsyndrome.co.uk/postnatal.png?189db0&189db0">


Lennon was conceived out of love with the assistance of Oxford Fertility Centre to Hayley (32 at ...

Beth  <img src="https://positiveaboutdownsyndrome.co.uk/antenatal.png?189db0&189db0">


I am Sarah and I live with my husband David and our three girls Hannah (almost 7 years), Beth (4 1 ...

Charlotte  <img src="https://positiveaboutdownsyndrome.co.uk/antenatal.png?189db0&189db0">


Hi everyone. This is the story of Charlotte’s journey, she is the joy in our lives. Second to the ...

Get in touch!

If you are a new/expectant mum, dad, friend or relative and you want to ask us something, just ask, send us a message using the form below, email or phone, no one will be offended. Whilst everyone’s experiences are different, we’ve all been where you are before. We are a UK based organisation.

We are also always pleased to hear from medical professionals and members of the public seeking information about Down syndrome or looking to distribute PADS literature.

Positive about Down syndrome is produced by DSUK, charity registration number 1184564


Phone: 07814 929306