Positive about Down syndrome

Positive about Down syndrome provides information and support to new and expectant parents of a little one with Down syndrome.

We have amazing online support for our families, we know how important it is for them to have access to accurate contemporary information and so provide our book #NobodyToldMe the truth about Down syndrome to families and literature to maternity units.

We have recently introduced online early development groups for our preschoolers, baby Makaton signing courses for new parents and Makaton training for members’ nurseries/childminders.

We believe every parent should receive the best possible care and support.

We believe the arrival of every baby with Down syndrome should be celebrated.

We believe every child with Down syndrome should be given every opportunity to flourish and thrive.

If you are looking for information about Down syndrome as part of family life, you have come to the right place. Here parents give their honest and open response to finding out their baby has Down syndrome.

If you would like to know about any element of our lives please just ask – whether you’ve been told baby may require heart surgery, are concerned about the impact of having a little one with Down syndrome may have on the rest of your family, what financial benefits you may be entitled to or what adulthood may look like, we can answer your questions, signpost you to information or local support, share our own experiences and hopefully enlighten and reassure you.

Some new and expectant parents struggle with discovering baby has Down syndrome, so if you are feeling like this, please know that you are not alone, we are here for you. We hope you and your extended family and friends will find this website inspirational and interesting and that you will get an inkling of how much fun life will be.

We can put you in touch with local support groups and online we have closed Facebook pages exclusively for expectant parents, new parents and also one for Grandparents. You do not have to do this alone!


Hi everyone. This is the story of Charlotte’s journey, she is the joy in our lives. Second to the day she was born, my second happiest moment in life was […]


I am Sarah and I live with my husband David and our three girls Hannah (almost 7 years), Beth (4 1/2 years) and Jessie (3 weeks!).   I can remember clearly […]


We declined the screening for Down syndrome when I was pregnant with our first child Maisie, feeling a little different as we were ushered away from the corridor which all […]


My story is very unique, in the sense that River wasn’t diagnosed with Down syndrome until he was 6 months old. I often feel like by not getting a birth […]


Lennon was conceived out of love with the assistance of Oxford Fertility Centre to Hayley (32 at Lennon’s birth) and Paul (59), and was born in September 2015 at 38 […]


It took us almost one week to name our second daughter.  We wanted to show the world that she is someone strong and beautiful; as much as her older sister […]


The day our beautiful daughter Amelia was born, our lives changed forever. We had tried to conceive for years, and after our second IVF cycle we welcomed our precious miracle […]


My husband Chris and I had been married for a couple of years and felt we were ready to start a family. It took a little time to fall pregnant […]


At the time I discovered my pregnancy, I had just turned 42 although I felt I was 25 still, I had a 13 year old daughter from a previous marriage, […]


On May 2015 my husband James, who was 32 and I who was 28, were absolutely over joyed to discover we had conceived on our honeymoon. At our 12 weeks […]

Provides a pack to a new or expectant parent including #NobodyToldMe and a congratulations card!

Provides a pack to raise awareness about Down syndrome and promote inclusion in a nursery.

Provides counselling to a new or expectant parent.

Pays for a new parent to access a 6 weeks Makaton baby signing course.

Provides resources and training to a maternity unit for a year.