Positive about Down syndrome

Positive about Down syndrome provides information and support to new and expectant parents of a little one with Down syndrome.

We have amazing online support for our families, we know how important it is for them to have access to accurate contemporary information and so provide our book #NobodyToldMe the truth about Down syndrome to families and literature to maternity units.

We have recently introduced online early development groups for our preschoolers, baby Makaton signing courses for new parents and Makaton training for members’ nurseries/childminders.

We believe every parent should receive the best possible care and support.

We believe the arrival of every baby with Down syndrome should be celebrated.

We believe every child with Down syndrome should be given every opportunity to flourish and thrive.

As teenagers with Down syndrome enter adulthood, along with their peers they develop their own voice, enter meaningful relationships, can find their way in the work-place and a home to call their own.
Here young people with Down syndrome and their families share their life-stories, we hope they will inspire and enlighten you.


“My daughter didn’t believe she was beautiful – until she heard the words come from Tom…”Bekki Maddox, 46, couldn’t convince her daughter she was beautiful. But after appearing on Channel […]


Hi I am Tatty. I am Greek but have always lived in England. When I was pregnant with my son George I was 39. I already had a little girl […]

Anghard aka ACE aka The Girl

Our lovely daughter was born weighing 3 lbs 9 oz, five weeks prematurely with Down Syndrome (DS) in March 2006, had open-heart surgery to close three holes in her heart […]


Hi I am Megan Wilcox and I have Down Syndrome but that doesn’t stop me being amazing. I started riding when I was just two years old at Follifoot Park […]


Hiya, my name is Heidi and I am 22 and I live independently in a flat, I have been living there for a year now and I am loving it. […]


What do you write when trying to tell the world about your life with a child who has Down Syndrome? So, I tried to remember what it was like when […]


The thing is, at the beginning, all you can imagine is unhappiness and dissatisfaction, such sadness as all your dreams and imaginings for your child are shattered. I compare it […]


In 2001 our beautiful baby daughter Emily was born. Having suffered several miscarriages and fearing I may never be able to have a baby I was ecstatic. After a couple […]


Alex is our much-loved second boy of three. Three boys are trouble whichever way you look at it, but they all bring us happiness in their different ways. When I […]


In some circles, the 12th of August is known as The Glorious Twelfth. I can’t argue with that – it was the day that Emily was born back in 1992. […]

Emily by Emily

Hello my name is Emily. I’m 25. I love my life. Life is fulfilling and beautiful thing to have. Like having relationships in my home. Family relationships like mother and […]

Provides a pack to a new or expectant parent including #NobodyToldMe and a congratulations card!

Provides a pack to raise awareness about Down syndrome and promote inclusion in a nursery.

Provides counselling to a new or expectant parent.

Pays for a new parent to access a 6 weeks Makaton baby signing course.

Provides resources and training to a maternity unit for a year.