Positive about Down syndrome

Positive about Down syndrome provides information and support to new and expectant parents of a little one with Down syndrome.

We have amazing online support for our families, we know how important it is for them to have access to accurate contemporary information and so provide our book #NobodyToldMe the truth about Down syndrome to families and literature to maternity units.

We have recently introduced online early development groups for our preschoolers, baby Makaton signing courses for new parents and Makaton training for members’ nurseries/childminders.

We believe every parent should receive the best possible care and support.

We believe the arrival of every baby with Down syndrome should be celebrated.

We believe every child with Down syndrome should be given every opportunity to flourish and thrive.

Children with Down syndrome can join in with most things that their friends do and be members of the same classes, clubs and groups. As with any child, family and experiences have the greatest influence shaping the character of a child and kids with Down syndrome are certainly no different.

There is so much knowledge and understanding about how best to nurture, encourage and support development for our children and young people and so there are increasing opportunities and high expectations.

Most children now go through mainstream primary and an increasing number successfully through secondary too…
We hope you enjoy these stories of our little one’s childhoods; they are young and fun for such a short time – enjoy!

Qeis Sheikh

Babies of any race or religion can have Down syndrome. Mum Tania Naima Khan joins us today to tell us all about her supportive Muslim community and their pride in […]


When our first child Kush was born, shortly after his birth we were delivered the news that he has a condition called Down syndrome. We had heard of Down syndrome, […]


Shilpa is a pediatrician and the mother of a 6-year-old son, Neil, who has Down syndrome. She has kindly allowed us to share her story – which also features in […]


My name is Paul and I’m the very, very proud father of two lovely boys, Sam, aged 6 and Will aged 4. When I think back to the time of […]


Harvey is a healthy, determined, engaging little boy with a shining personality who lights up every room he enters. He loves going to school and playing with his brother and […]


I’m pregnant! Couldn’t believe I was. I was on holiday in France with my family and had sent my husband out to a French pharmacy to buy a pregnancy test […]


My name is Mark. I met my wife in 2001 and we were married by 2003. Lorraine is 9 years older than me and already had a teenage son.  Feeling […]


My name is Sara and I am the mum of two wonderful little girls – well they are not so little anymore. They both adore ballet, they love swimming and […]


I’m Jade, Chloe’s mum.  I was 19 when I found out I was pregnant, and I hadn’t given the possibility of Chloe having DS a 2nd thought.  It wasn’t until […]


Very soon after having my first daughter I fell pregnant with a little boy and, again, we refused all screening but had all the routine growth scans which showed a […]


Aiden was born on the living room wooden floor in an unplanned home birth! Fortunately a fabulous home birth midwife arrived in time to deliver him and saved his life. […]


Kitty is the youngest of our four children, who were 8, 6 & 4 when she came along.  Hers had been a fairly stressful pregnancy for various reasons, but we […]


I’m Sarah, married to Chris and Mum to three little ones – Oscar, Alfie and Flo. I think for the most part we look like your average family of 5. […]


Somos padres de una hermosa niña de 5 años, es la menor de dos niñas, su nombre es Mia, tuvimos un diagnóstico prenatal, lamentablemente la mayor parte de la información […]


I’m Lu, I have two children through IVF, Nathan is now 9 and Billy 7, who happens to have Down’s syndrome. Our first round of screening came back with a […]


Hello, I’d like to introduce myself, my name is Liz and I live in Sherborne, Dorset. I’m originally from South Yorkshire, but moved to beautiful Dorset 5 years ago due […]


There are so many preconceptions about all aspects of our lives, which cannot always be challenged until we have the experience of actually living them. So it is with the […]


It is unsettling, and also seems totally ridiculous now, as I reflect on the depression and negativity I was consumed with, when our second son George was born. He is […]


There are four of us in our family. There’s a mummy and a daddy (Hannah and Tim, from this point on referred to as “we”), there’s an older brother Austin […]

Provides a pack to a new or expectant parent including #NobodyToldMe and a congratulations card!

Provides a pack to raise awareness about Down syndrome and promote inclusion in a nursery.

Provides counselling to a new or expectant parent.

Pays for a new parent to access a 6 weeks Makaton baby signing course.

Provides resources and training to a maternity unit for a year.