DSUK Positive about down syndrome community logo

Down Syndrome UK provides information and support to new and expectant parents of a little one with Down syndrome.

We have amazing online support for our families, we know how important it is for them to have access to accurate contemporary information and so provide our book #NobodyToldMe the truth about Down syndrome to families and literature to maternity units.

We also have online early development groups for our preschoolers, baby Makaton signing courses for new parents and Makaton training for members’ nurseries/childminders.

Visit our main website for more information on training and events

We believe every parent should receive the best possible care and support.

We believe the arrival of every baby with Down syndrome should be celebrated.

We believe every child with Down syndrome should be given every opportunity to flourish and thrive.

  /  About Us

Down Syndrome UK

Down Syndrome UK is a parent-led charity working hard to challenge outdated stereotypes and raise expectations for individuals with Down syndrome. What sets us apart is our comprehensive training and resources for both parents and professionals, expertly crafted by those with lived experience of Down syndrome. We ensure children with Down syndrome have the best developmental opportunities by equipping the people who support them – from families to educators and healthcare professionals – with evidence-based knowledge and practical strategies, enabling every child to flourish and reach their full potential.

Meet the DSUK family. A collective of dedicated services working together to empower every person with Down syndrome to live their best life.

Supporting Down Syndrome UK (DSUK) is easy and fun! We are so grateful for each and every one who raises money to ensure we can reach more families, provide more services and support.

We’re always happy to connect! Please don’t hesitate to reach out with any questions, comments, or just to say hello.