Positive about Down syndrome

Positive about Down syndrome provides information and support to new and expectant parents of a little one with Down syndrome.

We have amazing online support for our families, we know how important it is for them to have access to accurate contemporary information and so provide our book #NobodyToldMe the truth about Down syndrome to families and literature to maternity units.

We have recently introduced online early development groups for our preschoolers, baby Makaton signing courses for new parents and Makaton training for members’ nurseries/childminders.

We believe every parent should receive the best possible care and support.

We believe the arrival of every baby with Down syndrome should be celebrated.

We believe every child with Down syndrome should be given every opportunity to flourish and thrive.

  /  You-Can’t-Put-Me-Down Syndrome – George B

Q. Name and what you do?
George is in his last year of school and will attend college next September.

Q. What are you most passionate about?
George loves his family, friends and the significant adults in his life. He enjoys school and home life very much, his after school clubs and his overnights with his PA – who gives him her undivided attention! George’s passions aren’t extraordinary, but for him they are achievable, safe and deeply comforting.

Q. Who do you look up to/admire the most?
That’s easy! His daddy Mark. George and Mark have an incredible bond. And George actually follows Mark’s instructions! Unlike for his mum Tatty and sister Izzy!

Q. What’s your superpower?
Bringing out the best in people. Without speech and with a severe learning disability, George still radiates personality in his own way and is loved by many people.

Q. What are you most proud of?
He is resilient. He finds life hard at times, but he gets up, and moves on, leaving the difficulty in the past, not letting it affect the future. He doesn’t dwell on the negative and always searches for the positives of life.

Q. What are your dreams for the future?
George just wants to be happy, safe, loved, well fed, not in any pain or discomfort, stimulated and among familiar people who are patient and kind. Not too different from what everyone would want really! He has no interest or understanding of life beyond these basic needs. They make his life a good one.

7. What would you like people to know about what it’s like to have Down syndrome?
George has Down’s syndrome and Autism. It’s not easy. But he is completely accepting of his life, living is satisfied oblivion of the world’s complications. He finds humour in being cheeky and joy in loving deeply. He is who he is and will never want to be anything more. He strips life back to its core essentials and in doing so teaches us many lessons.