Matilda

Getting pregnant has been tricky for us, but we knew we had to try for a sibling for our first daughter Florrie. Our fourth cycle of IVF gave us our strongest embryo, it stuck and at our eight week scan we saw our little Prawn. Read More…

Sophie

After a textbook pregnancy, and a labour which followed my birth plan pretty perfectly, Sophie made her grand entrance into the world. But she didn’t cry, and she was struggling to breathe, so they asked to take her away and give her some help on the resuscitation trolley outside. When they brought her back in a few moments later, breathing well and all wrapped up, they gave her to her Dad and told us she was fine, she had just needed a little help, and the paediatrician would be in to talk to us soon. As Sophie was our first baby, and she had needed a little helping start, I thought this was normal, but her Dad looked at her, and looked at me and said “I think she has Down’s”. I told him not to be stupid, I was 31, our “risk” (what an awful term) had been 1:4000+, but minutes later the paediatrician arrived and confirmed that they suspected Sophie had Trisomy 21. We were extremely lucky in that he seemed well informed on the subject. He told us that some children with Down syndrome may sit, stand and walk, along with their typical peers, that some children attend mainstream school and others attend schools for children with special needs, and that some can live independently and others may not leave home. He was congratulatory and urged us to get to know Sophie, and everything she was. Read More…

Harvey

Harvey is a healthy, determined, engaging little boy with a shining personality who lights up every room he enters. He loves going to school and playing with his brother and sister; and his favourite things are his toy drill and building with his magnetic bricks. He loves going down slides and playing in the garden, dancing, watching films, football and eating pizza and chocolate! Harvey has Down’s syndrome – something we knew nothing about until he was born. Since then we have spent the last 5 years learning from Harvey – he has taught us so much already about what is important in life – something that no text book or leaflet could have – he has taught us to look beyond labels! He walked earlier than expected, a week before his 2nd birthday and communicates using signalong as well as speaking a few words verbally. Our journey so far has been full of ups and (a few) downs but overall we have learnt to never underestimate him … Read More…

Bethany

“My daughter didn’t believe she was beautiful – until she heard the words come from Tom…”

Bekki Maddox, 46, couldn’t convince her daughter she was beautiful. But after appearing on Channel 4’s The Undateables, Bethany finally found the love she longed for….
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Ο ΓΙΩΡΓΟΣ

Η ιστορία του Τζορτζ
Γεια, είμαι η Τατι. Είμαι Ελληνίδα αλλά από πάντα ζούσα στην Αγγλία. Όταν ήμουν έγκυος στον γιο μου τον Τζορτζ ήμουν 39 ετών. Είχα ήδη ένα κοριτσάκι – την Ίζυ, η οποία ήταν 3 ετών και αυτή η εγκυμοσύνη ήταν το δεύτερο παιδί που επιθυμούσαμε πολύ. Χρειαστήκαμε πάνω από ένα χρόνο για να συλλάβουμε και έτσι αποφασίσαμε να μην κάνουμε επεμβατικές εξετάσεις για να μην διακινδυνεύσουμε την ασφάλεια του μωρού μας. Η πιθανότητα να αποκτήσουμε ένα παιδί με σύνδρομο Down ήταν 1:1000.
Δεν έχω Ιδέα γιατί, αλλά ενώ εγώ ήμουν έγκυος είδα 2 άρθρα σχετικά με το σύνδρομο Down και μάλιστα ρώτησα γι’ αυτό σε έναν διαδικτυακό χώρο συνομιλίας. Μια κυρία απάντησε στο μήνυμά μου λέγοντάς μου τα πάντα για την όμορφη κόρη της… ένα υπέροχο ηλεκτρονικό μήνυμα γεμάτο αγάπη και αποδοχή. Μερικές φορές θα ήθελα να τη βρω και να της πω ότι τελικά αποκτήσαμε ένα μωρό με σύνδρομο Down. Read More…

George

Hi I am Tatty. I am Greek but have always lived in England. When I was pregnant with my son George I was 39. I already had a little girl – Izzy, who was 3 years old and this pregnancy was our much wanted second child. We had taken over a year to conceive so we decided not to undergo any invasive tests so as not to risk our baby’s safety. The chance we were given for having a child with Down’s syndrome was 1:1,000. Read More…

Lowenna

I’m pregnant! Couldn’t believe I was. I was on holiday in France with my family and had sent my husband out to a French pharmacy to buy a pregnancy test to be sure. He later told me how he and my brother in law had asked for test, by imitating a pregnant lady and saying, “Up le duff” a lot!

I got home and went to the midwife in our local village – I knew her as I had had my daughter 3 years previous so she was pleased with my news too. She offered me the usual blood tests and I said yes, I had had them before so may as well with this little one. Read More…

Anghard aka ACE aka The Girl


Our lovely daughter was born weighing 3 lbs 9 oz, five weeks prematurely with Down Syndrome (DS) in March 2006, had open-heart surgery to close three holes in her heart aged 16 weeks. She recovered fully from this and entered mainstream primary schooling supported by access to a Specialist Resource Base (SRB) within the school. In the autumn of 2017, aged 11, she became the first pupil with DS to attend her High School, where she is in the mainstream population supported by one-to-one assistants. We are now eight weeks into the term, both school and Ace feel that she is settling-in nicely and she has just been voted Form Captain. Each week she also attends classes or lessons in athletics, ballet, Guides, swimming, trampolining, and judo. She also enjoys riding and climbing. Read More…

Sam

My name is Paul and I’m the very, very proud father of two lovely boys, Sam, aged 6 and Will aged 4.

When I think back to the time of Sam’s birth and diagnosis I often wish I could go back in time and have a reassuring chat with myself! A lack of knowledge and experience caused me to fear the worst, but I couldn’t have expected how unnecessary that was and how ace things would really turn out. It actually makes me feel a bit silly in retrospect, but it’s all understandable as well! Read More…