Positive about Down syndrome

Positive about Down syndrome provides information and support to new and expectant parents of a little one with Down syndrome.

We have amazing online support for our families, we know how important it is for them to have access to accurate contemporary information and so provide our book #NobodyToldMe the truth about Down syndrome to families and literature to maternity units.

We have recently introduced online early development groups for our preschoolers, baby Makaton signing courses for new parents and Makaton training for members’ nurseries/childminders.

We believe every parent should receive the best possible care and support.

We believe the arrival of every baby with Down syndrome should be celebrated.

We believe every child with Down syndrome should be given every opportunity to flourish and thrive.

  /  Growing up   /  Emily by Emily

Emily by Emily

Hello my name is Emily. I’m 25. I love my life. Life is fulfilling and beautiful thing to have. Like having relationships in my home. Family relationships like mother and daughter, father and daughter. I live with my mum and dad and the rest of my family are my sister Laura and my brother-in-law Mac and also my younger brother Matthew and my sister-in-law Kerry. I am an auntie to Milly and Joshua.


I like to do musical theatre. I go to Clubbercise, there’s glo-sticks and lots of chart music. I do all the moves. It’s about exercise and keeping fit. I go with my support worker Lily. I feel sweaty and hot.

I go to college and I’m studying health and social care. I’m learning about keeping children safe. I do money and time management, English and Maths. I’ve made some new friends. Last year I did catering and I passed. I go to college to learn, focus and work hard.

I work part time at the hairdressers, The Cutting Room. I do the housekeeping. I have a break with a sausage sandwich and pop. I have to be on time and not late. The best bit is my wages and I spend it on new clothes, Costa coffee and magazines.

I have Down’s syndrome and I’ve got learning difficulties. I have good feelings for Down’s syndrome – it’s about having my own rights.

I like partying and dancing!